When Dean Clifford posted a selfie at Suncorp Stadium in Brisbane with his mother Jenny, he was just sharing a moment at a rugby game. What came back from Meta's AI stopped him cold. The automated prompt attached to his photo read: "What's the story behind the zombie costume?"

There was no costume. Dean Clifford, 43, has lived his entire life with Epidermolysis Bullosa, a rare genetic condition that causes the skin to blister, tear, and wound at the slightest friction or pressure. He was diagnosed 18 months after birth. Doctors told his family he would not survive past the age of five.

A Condition That Rewrites Every Expectation

Epidermolysis Bullosa is estimated to affect around 20 newborns per million live births in the United States. In its most severe forms, it is fatal in infancy or early childhood, with children dying from infection, fluid loss, and malnutrition. Dean beat those odds, but not without cost.

At ten years old, he and his family were told he would never walk again. He was using a wheelchair when he was offered the chance to carry the torch at the 2000 Sydney Olympics. He spent six months teaching himself to walk again so he could take it.

He is now believed to be one of the oldest people in the world living with EB. He is an internationally recognised powerlifter in his weight class, a Brisbane Broncos ambassador, a Disability Employment Australia Hall of Fame inductee, and an ambassador and spokesperson for EB Awareness.

Four Decades of Whispers, Then an Algorithm

"I have been bullied and picked on since I was 2 years old," Clifford said after the incident. "I hear all the whispers behind my back. I have had people try to fight me because they thought I was the weakest link. I have even had people threaten to kill me in the past."

He told 4BC Brisbane that the comments following the AI prompt included suggestions that he should not exist and descriptions of "very despicable things" people wanted to do to him.

Lisa Brains, who also lives with EB, described Dean's public presence this way: "He wears his rare disease for the world to see and never shies away from it. Dean has always put himself out in the public eye, not just to educate the public on our disease but to show that you can live a fulfilling wonderful life."

Meta Apologized. Dean Is Reconsidering Everything.

Meta issued a formal statement: "We're sorry to hear about Mr Clifford's experience and sincerely apologise for any distress caused. These prompts were generated automatically and may not always produce the results intended. We take this matter seriously and constantly seek feedback on our AI products and models to make them better over time."

The response from the public was largely one of support. Commenters called him an inspiration. One wrote simply, "Everyone loves ya mate."

But Dean's own response to Meta's apology cut to the core of something the statement didn't address. He said the incident had brought back painful memories from his childhood, and that he is now reconsidering his entire approach to social media. For a man who has spent decades deliberately putting himself in public view to show what life with EB looks like, the idea of stepping back is not a small thing. It is the cost of an algorithm that saw a face and reached for the easiest, most harmful label it could find.